[Press kit]

: Many individuals and organizations are involved in the work of AmFAR, that is,: raising funds for the support of AIDS research. We asked some of these allies * for their reaction to AmFAR's involvement in the worldwide initiative to develop a preventive vaccine for AIDS, and here is what they said: U Concerned Parents for AIDS Research (CPFA) is proud of its partnership with AmFAR and proud of the lead AmFAR has taken as the scientific community embarks upon this new and exciting area in AIDS research. We've come so far with the development of protease inhibitors, with gene therapy research, and with research into ways to control opportunistic infections, all of which has been supported in-part by CPFA grants, that the obvious direction for research at this point is the development of a vaccine. Protease inhibitors have allowed people to live longer with AIDS, but that's not our goal; our goal is to keep HIV in check so that people can live out their full life span, and, like patients with diabetes, asthma, or any other chronic condition who live to be eighty or ninety years old, still lead normal, healthy lives. - Roberta Bogen, President, Concerned Parents for AIDS Research Gift for Life (GFL) has worked to educate the gift industry about people living with AIDS, and to heighten awareness of the pandemic itself. Through the fundraising efforts of a handful of dedicated individuals, and with AmFAR's help, we have taken the lead in our industry in the search for a cure. In the absence of a cure, it is extremely critical for us to recognize the importance of keeping people who are living with HIV healthy and productive, and we are pleased with the commitment GFL has made in this direction. Our role as fund raisers includes helping people, and we do this through furthering research and prevention education. Much has been discovered in the relatively few years that we have been fighting this disease. Scientists and the medical profession are more knowledgeable now about how the virus works than they were even a few short years ago. GFL is extremely proud of its association with AmFAR for this reason. We have already funded some of AmFAR's early vaccine research, specifically in gene therapy, and we are proud to be a part of the advances that have been made in this area because of our contributions. Our intention has always been to support research that will pave the way for the eradication of this horrific disease, and we believe that now is the time for us to set our sights on this goal. We're not going to eradicate it through individual precautions and control; we're going to eradicate it with a vaccine, and we feel strongly that this should be our common goal: Working toward a world without AIDS. - Peter Schauben, Founder, Gift for Life Pundits are fond of saying that my generation is aimless because it hasn't had a "war of its own." On the contrary, AIDS is that war. It is a fight for the lives and the conscience of our people. It is a war whose casualties are vast and include not only individuals who are infected, but also those who are affected by the disease. For many, including those of us on the Young Executive Support team, the AIDS epidemic is not just about viruses or vaccines, politics or ideology. At its core, AIDS is about families, immediate and extended: mothers, fathers, sisters, brothers, cousins and friends. This is why we support AmFAR's work on vaccine developmepit, both therapeutic and pre- The Spielfogel Family of Boca Raton, ventative. It is the vanguard of AIDS Florida: Stacie, Gary, Ross and Lucas. research and now, the most crucial Stacie Spielfogel is the President of approach in the fight against this deadly CPFA's Florida Affiliate. disease. Without this weapon, our country will continue to lose its sons and daughters. This is a sacrifice we are not willing to make. -Joe Miloscia, Chairman, Young Executive Support (Y.E.S.) Young Executive Support (Y.E.S.) was founded as a benefit committee for AmFAR five years ago at a time when the need to do something about AIDS inspired us all. It was a way for us to marshal our resources and raise money for the research that would effectively wipe out this horrible disease. The solution sounded quite simple: we raise enough money to fund the research and a cure would be found. I have always trusted the AmFAR Board of Directors and the members of the Scientific Advisory Committee to be able to determine where the resources can best be used, and the news of even slight successes reinvigorates us and encourages us to double our fund-raising efforts. Today, when Dr. [Mathilde] Krim calls us together to report on some scientific breakthrough for which AmFAR is partly responsible, we share in her pride. It is always exciting for me to learn just how close we are to discovering the right treatment, the right combination of treatments, or the right method of approaching vaccine development. I am anxious to find a cure for those who are already infected with HIV, as well as keeping future generations from becoming infected. I hope that someday AmFAR's work will not be needed, and I believe that the current initiative to fund vaccine research will make my dream a reality. - Glenn Isaacson, Founder, Young Executive Support (Y.E.S.); 0 9 0 0 0 9 0 0 0 0 0 0 0 * * * 0 0 0 0 0 0 0 * 0 * 0 * * 0 0 0 0 0 0 0 0 0 * 9 0 0 0 * 0 * 0 * 0 * 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 a Sheldon W. Andelson AmFAR Public Policy Internship Program ach year, from over one hundred applicants, AmFAR selects two students to gain hands-on experience in the field of AIDS-related public policy as Sheldon W. Andelson Public Policy Interns. This summer Alice Chen, a Harvard University graduate currently studying at Oxford University as an American Rhodes Scholar, and Felicia Chu, an Honors Biology major at Stanford University, joined the Washington-based Public Policy staff for ten weeks. how Washington works, and to be a part of our advocacy efforts on behalf of AIDS research and people with AIDS," said Jane Silver, AmFAR's Director of Public Policy. During their internship, Ms. Chen and Ms. Chu worked closely with the public policy staff, joining in on meetings with AmFAR coalition partners and participating in activities on Capitol Hill. Their responsibilities included monitoring Congressional hearings and assisting in the drafting of fact sheets and legislative public policy background pieces. They had the opportunity to interact with experienced health policy advocates and AIDS experts from numerous federal agencies, including the Food and Drug Administration, the Centers for Disease Control and Prevention, and the National Institutes of Health. They also worked with members of AmFARs Board of Directors and with the staff of other voluntary health organizations and advocacy groups. "The interns were on the Hill from day one," said board member Arlen Andelson during a meeting last summer, "and they were saying that it was one of the most incredible experiences of their lives." Mr. Andelson is the brother of the late Sheldon W Andelson, Esq., a former AmFAR board member in whose memory AmFAR's Office of Public Policy and Public Policy Internship Program were established. In addition to contributions from the Andelson family, the Sheldon W Andelson Public Policy Internship Program is also supported by Mr. Alan Sieroty, who underwrites the internship of a Stanford student each year as an enduring memorial to his friendship with Sheldon W Andelson. In addition to their involvement in the office's daily activities, each of the interns also completed an in-depth research paper of relevance to the ongoing work of the office. For her special project, Ms. Chen prepared a report that examines the history and chronology of women in clinical trials and the factors that have influenced the participation of women in those trials. Ms. Chu completed a project that reviews FDA requirements and procedures for Phase IV (post-approval) clinical research, industry compliance with those requirements, and existing barriers and disincentives to compliance. In addition to the research papers, both women assisted with arrangements for the September 1997 Global Strategies Conference on Mother-toInfant HIV Transmission co-sponsored by AmFAR. "Both Alice and Felicia are committed to the principles that AmFAR advocates in Washington and we hope that this opportunity to be involved in AIDS advocacy will lead them to channel their immense talent and energy into further work on behalf of people with HIV/AIDS," said Scott Sanders, Associate Director of Public Policy, who coordinates the internship program. Both Ms. Chen and Ms. Chu plan to attend medical school. "We were working on some tough issues this summer, including building Congressional support for needle exchange programs and trying to stop damaging changes to the legislative mandate to the Food and Drug Administration," said Ms. Silver. "They had the chance to experience the challenges that we face on a daily basis." In reflecting upon her experience at AmFAR, Ms. Chu stated, "I learned how you can take a stand for what you believe in, for what you believe is right." Sheldon W Andelson AmFAR Public Policy Internship participants Alice Chen (right) and Felicia Chu in front of the AmFAR office in Washington, D.C. The internship program is designed to provide the students with an opportunity to make a meaningful contribution to public health, while learning about the legislative process and public health policy. "We want to give the interns the opportunity to see firsthand 7

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[Press kit]
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American Foundation for AIDS Research
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1998
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press kits
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"[Press kit]." In the digital collection Jon Cohen AIDS Research Collection. https://name.umdl.umich.edu/5571095.0363.007. University of Michigan Library Digital Collections. Accessed June 6, 2025.
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