Bridging the Gap: Conference Record [Abstract book, International Conference on AIDS (12th: 1998: Geneva, Switzerland)]

734 Abstracts 34246-34251

12th World AIDS Conference

Lessons Learned: Problems in HIV/AIDS families are very complicated. We
found that continuous education of their children usually were interfiered with other
problems such as economic problem, discriminated practice from other people,
and fearing of lose of confidentiallity, Formation of network among relevant social
service agencies and tunely of service are the most suitable solution for long term
support
34246 The changing needs of HIV positive youth: A historical
perspective of Bay area young positives
Meredith Broomee, Jason Mayo, J.M. Mayo. Bay Area Young Positives; 518
Waller San Francisco, CA 94117, USA
Issue: The psychological and social needs of HIV positive youth have drastically
changed over the past eight years, and there are significant differences present
between the first and subsequent generations of clients served by BAY positives.
Given the rapid increase in the number of HIV infected youth, it is crucial that we
correctly assess and treat this population's mental and emotional needs.
Project: BAY Positives has undertaken an intense examination of being a
peer-run, peer-based agency and the evloving nature of the HIV positive young
person, in order to identify current trends to better serve our target population.
A look at the changing demographics of our clients, coupled with interviews with
current and former members and supporters, will yield insight into the criteria
necessary to create youth-based HIV/AIDS support organizations and netwroks.
Results: The study has confirmed that, while some issues remain prevalent
to our clients throughout our history, other social needs have become more
insistent. We have changed, augmenting older types of support (i.e. traditional
support groups and one-on-one peer counseling) with more activity-based social
events. An increasing proportion of our clients are also multiple-diagnosed, having
substance and mental issues.
Lessons learned: As advances in medical treatment have occurred, the emotional needs of young people with HIV/AIDS have also been altered. Perceptions
of the epidemic have changed, and intense investigation into our past and present
has given us the information we need to continue to meet the needs of HIV positive
youth.
34247 The home care programme (HCP) for HIV patients and
care givers in Singapore
Sagaiyamary Stevens1, Rachael Chew2, Teresa Strau Ghan2, Gogi
Lavaani Pillai2, Ho Lai Peng2. Blk 775 Yishun Ring Road, #05-3590;
2Communicable Disease Centre, Singapore
Issue: The setting up of a Home Care Programme targeted at HIV patients and
their care givers by a Governmental HIV treatment centre.
Project: To cope with the increasing number of HIV patient, the plan of having
a Home Care Programme managed by the HIV treatment centre with maximum
volunteer participation was formulated in Sept 97. This HCP aims to provide: 1)
an understanding of HIV illness to the patients and his/her caregiver. 2) To give
emotional and psychological support to both the patient and the care givers and
3) To assist in reducing the stigma attached to the illness by involving volunteers
and family participation in the programme.
Result: In Sept 97, Home Care Working Committee was set up to provide a
multi-prong approach to the establishment of the HCP. These include drawing up
a programme for training and education of volunteers and providing home care
to patients. The training programme is comprised of enhancing the knowledge of
the 1) Myths and Facts of the HIV illness. 2) Infection Control 3) Legal Rights 4)
Physiotherapy and Nutrition 5) Dealing with Grief and Death.
Volunteers are recruited from Health Care Workers currently working with HIV
patients, NGOs, CBOs. Since the set up of the HCP, 3 patient had benefited. The
continuity of their care are also partially provided at home by a family member
who provides the main role in the care of the patient with a volunteer to provide a
supportive role.
Lessons Learned: Within the short establishment of this programme three
patients have benefited from the Programme Physicians and patients and Family
members have taken an interest in this programme.
| 34248 1 Point-Solidarite: an alternative to psycho-social care
Adriana Juez, Delphine Fanget, K. Cherabi, S. Royerso, C. Serindat,
C. Miguel-Mud'oz, J.M. Faucher, E. Hirsch. ARCAT- Sida, 96-102 Rue De
Buzenval, Paris, France
Issues: Fragile populations affected by AIDS need global care by a multidisciplinary team for their social insertion or reinsertion: access to and maintenance
of social rights and care.
Project: Most people attending the center were precarized before the disease.
They present the following profils: intravenous drug use, male and female prostitution, homosexuality, isolated persons and precarized families, migrants, many
of whom are illegal. The most frequently encountered problematics are social

marginalization, a lack of social rights and medical follow-up, psychiatric and
psychological problems, roaming, illiteracy and multiple drug use. Point-Solidarite
is composed of a welfare service and medical, judicial and psychological consultations. The team welcomes, supports and counsels, and draws up a personal
plan covering access to rights, housing, care and citizenship.
Results: The active file consists of 160 persons. This type of accompaniment
requires an excellent working knowledge of institutional and legislative measures,

high-quality listening and flexible teamwork. With the changes in the epidemic,
new problems are arising such as employment, compliance, inflexible administrative procedures, housing, psychiatric problems, a lack of residency permits,
and the need to find new ways of working (self-help groups, facilitators and peer
groups, etc.).
Lessons Learned: It is through close coordination between the different forms
of support (social, medical, judicial, etc.) internally, and by a solid long-term
partnership with the different health and welfare actors that persons can be
encouraged towards autonomy.
34249 Role of people living with HIVIAIDS with support, care
and prevention in Indonesia
Anom Wirayudha Gusti Ngurah1, Tuti Parwati2, M. Muller3. 1J.L. Belimbing 66 Y
No. 4, Denpasar 80231, Bali; 2Citra Usadha Indonesia Director, Denpasar;
3 YCUI Support Project Development Volunteer, Denpasar, Indonesia
Issue: Due to the invisibility of people living with HIV/AIDS (PLHA), the vast
majority of HIV/AIDS projects in Indonesia are on focused on preventative aspects while support and care community based projects continue to be dismissed
and remain under-resourced and unsupported at the expense of the quality of
PLHA. The participatory role and contributions of PLHA in all areas of HIV/AIDS
work largely remain undervalued in Indonesia due to the shame, fear and isolation commonly felt and experienced by PLHA as well as the general lack of
understanding and acceptance of PLHA in the broader, public communities.
Project: YCUI maintains flexible approaches which respond to the changing
needs and priorities of the groups and communities we work with. Working with
peer support models, YCUI is aiming to promote and support the participatory
role of PLHA in Bali whilst decreasing the negative impacts of HIV/AIDS through
the development and intergration of the following approaches:
1. Public Advocacy - Activities to dispel existing myths, misconceptions, negative attitudes and stigmas about PLHA, whilst promoting positive messages and
non-discriminatory environments for with and affected by HIV/AIDS.
2. Empowerment - We believe peer support and the subsequent formation of
group are a humanistic orientated forum where the open voices and experiences
of PLHA are uniquely valued, supported and encouraged. Further, this support is
integral to the facilitation of empowerment for PLHA.
Results: The development and implementation of community-based support
group for PLHA is an on-going and often difficult activity in Bali. Further, individual
and community empowerment and human rights, particularly with PLHA groups,
are new concepts which are gradually and begrudgingly being introduced into
Indonesian socio-political thought. The project of identifying and addressing the
needs of PLHA through a support program will facilitate the empowerment and
advocate for growing network of PLHA in communities where denial, invisibility
and discrimination prevail.
Lessons Learned: We have gained invaluable experience and knowledge in
our attempts to change attitudes and behaviours relating with PLHAs, gaining
new perspectives on this most often difficult and lengthy process. Despite these
obstacles we have also come to appreciate more deeply the support and hope
which grows through the strengthening of individual and community networks.
34250 Buddy system in Flanders - Belgium
Marc Michielsen. Jaak Blockystraat, Mortsel, Belgium
Issue: The Buddy system aims to provide moral, social, practical support to PWA,
regardless of sex, race, sexual preference, religious or philosophical conviction.
Project: Specific system of care for PWA, because the existing supportsystems
didn't seem able to cope with the complexity of problems such as fear-stigmatisation. Discrimination-Family conflicts - existential doubt that HIV/AIDS can cause.
Buddys play a vital part in the multidisciplinary care. They can form a link between
home/hospital; they offer the PWA a new form of independence. Tasks of a buddy;
practical support-moral-social signaling of problems. Stimulating the autonomie
of PWA.
We believe that it is important to limit hospitalisations to a minimum and leave
the PWA as long as possible (even in the most terminal stages) as long as
possible in their own familiar environment.
34251 | HIV people: Social follow up since the outcome of highly
active antiretroviral therapy
David Zucman1, Dominique Albucher2, D.Z. Zucman1, C.C. Citron1,
I.V. Vergne1, P.P. Paillet1, F.H. Herve1, H.G. Gazel1. 1 RVH Val De Seine Hopita
Foch 40 Rue Worth 92150 Suresnes; 2Reseau Ville Hopital Val De Seine,
Suresnes, France
Issues: Highly active antiretroviral therapy (HAART) improves the health status
of people with AIDS (PWA) and changes their life perspectives. This modifies the
social intervention.
Project: Retrospective and comparative study of social intervention for HIV

patients, before and after the outcome of HAART. The medical and social follow
up are started at the hospital during the first medical advice. A partnership is set ut
between the general practitioner, the nurses, the social and charity organizations
and the housing organizations, through the "Reseau Ville-H6pital". It is an non
commercial organization (created in may '93) which purpose is the improvement
of medical care and living conditions of PWA. We try to identify the evolution of
the needs of PWA.